Cynulliad Cenedlaethol Cymru	National Assembly for Wales
Bil Awtistiaeth (Cymru) drafft	Draft Autism (Wales) Bill
Arolwg Ar-lein DAB119	Online Survey DAB119
Ymateb gan Cyfrannog ar-lein 119	Evidence from Online Participant 119

Please refer to questions in the Online Survey.

Question	Answer
01	Yes Only if it's comprehensive and inclusive. Language such as high and low functioning should not be used. People should be aware that non verbal isn't synonymous with non understanding, and it should be clear that people who are historically classed as 'high functioning' can have significant sensory processing needs, and still have meltdowns.
02	Not sure Many neurodevelopmental conditions are linked, this needs to be clear. For example, you can be autistic and have ADHD.
03	Not sure I think they are if they receive funding. There's very little resource already, and if no additional funding or staff are provided, it's going to be a case of something being great in theory, but not in practice. Perhaps the Integrated Autism Service should hold some of the responsibility. I also think it's imperative that you employ actually autistic people to provide the training and information, as it will ensure autistic voices are heard, and that the nuances of the bill are applied in an effective and practical manner.
04	Yes This is essential, particularly with LEAs. It is all too easy for them to dismiss the difficulties autistic people face, and they feed to ensure proper training is delivered to school staff, particularly in light of the new SEN legislation and the EHPs br
05	I think this is a reasonable length of time to ensure they get it right. However, you must include actually autistic people in the creation of the strategy. As the saying goes: nothing about us without us.
06	Guidance should be written in line with the strategy and provided at the same time. There isn't really a reason why this cannot be done. Again, you need to ensure autistic people are involved.
07	As long as it's a period in which organisations have to bring themselves in line with the legislation, the timeline is fine. Although many will see it as a time for people to ignore it, try and figure out how to get out of it, and to make life more diffic
08	You will need to provide adequate funding to health though, particularly children's services.
09	Yes Neither myself or my son have received one. I wonder if my youngest will post ADOS.
10	Yes As long as it's clear the list isn't exhaustive, and that not all of the professionals need to be involved.
11	Paediatrician (for children's services)
12	Being a parent (so it being assumed you don't need help), having other neurodevelopmental or mental health conditions, perceived functioning level. It is currently almost impossible for 'high functioning' autistics to get support from social services, occupational therapy, employment support, and educational support. This directly feeds the higher than average suicide rate among 'high functioning' autistics (whose average age expectancy is approximately 37 years.)
13	Yes
14	Carer details, level of support required, whether this fluctuates, co morbid conditions.
15	It should be written on the Bill. It needs to be clear on the bill so people don't collect unnecessary personal information. It needs to be clear why the information is required, and what it will be used for.
16	Not sure You would need to provide more information. What information, and why?
17	It should happen all the time. We're autistic all the time, not once every three years. Also: the language autistic people want used is 'autistic people' not 'people with autism.' You need to ensure you have it right before rolling this out: again, you need to employ actually autistic people to assist with it.
18	It will be good if it's done correctly. I think that speaking English or Welsh doesn't matter, but effective communication does. Fairness is subjective, but providing equal opportunities and making sure organisations actually know what autism is, and how it affects people differently (even the same person on different days) is essential. The justice system has a horrible history of dealing with autistic people, I guess the only way is up. Hopefully it'll help my anxiety and stress levels while I try and make people (particularly educators) know that all three of my household are autistic, but we're all different, and that denying it or saying you don't see it doesn't mean it goes away.
19	Employ autistic people. Involve us, we have voices and first hand experience. Don't make legislative decisions without us. I would be very interested in being involved if you did (autistic mother with autistic children.) You would need to advertise this s